Thursday, November 17, 2011

I am not playing Hookie...

Hello Momginerd fans,

I have been  remiss in not updating the blog lately, but I PROMISE I have a good excuse.  I have been dealing with some pretty major heath issues.  I feel comfortable posting now, that we have ruled out any life-threatening issues, but I am still searching for answers.

I have RA, and for a chronicle of that please see: My body is trying to kill me, which details some of the trials and tribulations of living with an autoimmune disease.  About 6 weeks ago my rheumatologist increased one of my medications, and either coincidently or as a side effect, I have developed some "interesting" neurological "disturbances."

Including: numbness on the left side of my face, lack of coordination/vertigo, visual halos/auras/floaties, losing my words when speaking, and numbness in hands and arms (mostly concentrated on the left side).  Through process of elimination we do know 3 things:

1.  I have a BRAIN, and she is gorgeous.  I know because the doctor gave me a CD and I can look at her whenever I want!

2.  I do not have lesions, aneurisms, tumors or other brain related abnormalities that could be causing my issues.

3.  I do have some spinal issues with 4 protruding discs, but again they may explain SOME symptoms, but not all.

What we do not know, but suspect, is that I probably have a combination of issues (yeah, yeah, enter complicated woman comment here) that are causing my problems.  We believe the hand issues are caused by the protruding discs, so I am going to physical therapy.  I most likely have Hemiplegic Migraines which explain the other effects, and some residual side effects from the increase in the RA medication, methotrexate. I have had migraines in the past, but never one that has lingered as long as this one. I basically have been living with some level of a headache since the beginning of September.  Most of the time I can power through and move on, but sometimes they knock my flat on my ass.  NOTHING makes it go completely away, and I can now set up a side business dispensing drugs, if needed, since I have been prescribed everything from Imitrex to Vicodin to try and get these headaches under control. 
I used to look human, but I have
had 4000 Xrays in 1 month
I am anxiously awaiting yet another call with results of yet more tests to see where the next step will lead.  Most likely that will be to a neurologist and a pain clinic....which I am sure will end up in yet more tests so that I finally cease to look human and more resemble this a halo of myself, and more drugs to take up space in my overflowing aresenal....

Until then, the good news is my doctors (damn, that is scary to have to put the S after it), agree that I am to take it easy and play hooky, I  mean work from home, as much as possible.  Thankfully, I have an awesome team who understands and really do not NEED me daily to do their jobs!

Thank you all for your patience with me, I promise once all this is sorted out, I will be back full of snark and sarcasm per usual!

Lots and lots of  love,

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